One thesis.
Three audiences.

Each track carries a distinct pitch and evidence base. Tracks can be combined within a single talk when the audience demands it. The choice belongs to the engagement.

01

Qualitative Patient Intelligence in Rare Disease Trials

Clinical trials capture what happens at scheduled visits. They miss what happens between them. In rare disease, that gap is not incidental. It is predictive of dropout, non-adherence, and patient loss. Anchored in six Session 1 interviews and the Margaret composite case.

ForRare disease foundations, patient advocacy organizations, clinical researchers, sponsor medical affairs teams.
02

The Methodology Track

Recursive Triangulation. Multi-model AI with independent analytical lenses. Human review at defined gates. Single-model AI is insufficient for consequential decisions. This track is data-agnostic. The beachhead is clinical data. The architecture applies anywhere triangulation is required.

ForData science leaders, AI researchers, CIOs and CDOs, enterprise technology executives, AI governance practitioners.
03

Federal Policy and Qualitative Infrastructure

Federal biotechnology investment has no architectural category for qualitative patient intelligence. The gap is an infrastructure problem, not a funding problem. Qualitative patient intelligence must become named federal infrastructure. The way electronic health records did twenty years ago.

ForFederal agency staff (FDA, NIH/NCATS, AHRQ), policy think tanks, regulatory affairs leaders, rare disease policy coalitions.
On the Record

Past and confirmed engagements

ATS Orlando 2026 · May 15-19 · Three Engagements
QIS poster at the Respiratory Innovation Summit, Space 143, May 15-16. Kiosk at the new ATS AI Lab! Answers program, AI Lab Kiosk 4 in Booth 1028, fifteen hours across May 17-19. Twenty-minute presentation in the AI Lab! Answers Theater, May 19, on how patients use AI.
Duke-Margolis / FDA RISE Together
Three questions read aloud across three sessions · March 2026
Research!America Alliance Forum
Federal biotech investment mapping · April 2026
Illinois Rare Disease Day 2026
Caregiver roundtable participation · March 2026
eCOA Exchange #6 (C-Path)
EU Clinical Trial Regulation documentation gap · March 2026
Ongoing · Host · Featuring Verity Grey
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